About BXConnect
A national registry built for patients and researchers
BXConnect brings together people living with bronchiectasis and NTM, their care teams, and Canadian researchers so we can shorten the path to better treatments.
About the Registry
What is CanBE-NTM?
The Canadian Bronchiectasis and Nontuberculous Mycobacterial Infections Registry (CanBE-NTM) is a Canadian research registry for adults living with non-CF bronchiectasis or NTM (nontuberculous mycobacterial) lung infection. A registry is a secure database that collects health information over time. CanBE-NTM is observational, which means it follows what happens in real life and does not change the care or treatment decided by you and your healthcare team.
If you choose to join, the registry may collect information already gathered as part of your care, such as your medical history, CT scans and other imaging, breathing tests, sputum or lab results, medications, and questionnaires about your symptoms and quality of life. Your information may be updated each year so researchers can better understand how bronchiectasis and NTM change over time.
By taking part, you help build a clearer picture of bronchiectasis and NTM in Canada. This can help researchers and care teams better understand these conditions, improve future research, and support better care for people living with bronchiectasis and NTM across the country. People who are interested may also choose to be contacted about future research studies or clinical trials.
Voluntary & Consent-Based
Taking part is voluntary. Before any information is collected or stored, you will be asked to provide written consent. Registry information is stored securely through the University of Calgary research platform, and the study is reviewed through research ethics processes at participating sites.
If you are interested in joining, please speak to your lung doctor and you may contact us.
Why the registry matters
Building Canada's most comprehensive bronchiectasis database
The Canadian Bronchiectasis and NTM Research Registry is a prospective observational study collecting clinical, imaging, and quality-of-life data from people with non-CF bronchiectasis and NTM infections across Canada.
Led by the University of Calgary and supported by national partners, BXConnect is designed to speed up study startup, recruit people who meet trial criteria faster, and give researchers a shared foundation for collaboration.
REB21-1131
Ethics Approval
Longitudinal follow-up
Annual updates
Study snapshot
Study ID
NCT06144996
Lead Institution
University of Calgary
Target Enrollment
2,000 participants
Study Duration
2023 – 2050
Long-term observational — no defined end date
Registry platform
Explore the Data
Interactive browsers allow clinicians and researchers to explore de-identified registry data.
Research Areas
Who we enroll
The registry is open to adults across Canada who have been diagnosed with non-CF bronchiectasis or NTM infections. By enrolling a diverse cohort of participants, we can better understand how these conditions affect different populations and identify patterns that may lead to improved treatments and care strategies.
Team
Meet our team
Learn about the researchers and clinicians behind CanBE-NTM and how to get in touch.
Meet the team →Get Involved
Ready to participate or collaborate?
Whether you're a patient interested in enrollment, a healthcare provider seeking to refer patients, or a researcher exploring collaboration opportunities, we'd love to hear from you.