Research & Collaboration
Driving discoveries through collaboration
Our registry facilitates partnerships between academic institutions, pharmaceutical companies, and healthcare providers to accelerate bronchiectasis research.
Research Objectives
What our data enables
Our comprehensive data collection supports multiple research objectives.
Data Collection Goals
- Understand disease patterns and progression
- Identify factors that influence disease course
- Enable epidemiological studies
- Support clinical trial recruitment
- Inform treatment guidelines
Research Methodology
Clinical Assessments
At enrollment and annual follow-up evaluations
Quality of Life
Patient-reported outcome questionnaires
Treatment Tracking
Treatment history and outcomes monitoring
Longitudinal Analysis
Exacerbation and hospitalization data over time
Research database
Apply for access to the research database
Qualified researchers and institutions can request access to de-identified registry data. Submit an application to begin the approval process.
Collaboration
Partner with us
We welcome collaboration with researchers, pharmaceutical companies, and academic institutions.
For Researchers
Access registry data for collaborative research projects.
- Data sharing with appropriate approvals
- Joint research projects
- Publication collaborations
For Pharmaceutical Partners
Accelerate drug development through registry collaboration.
- Clinical trial partnerships
- Patient cohort identification
- Streamlined recruitment