Privacy Policy

1. Introduction

BXConnect (“we,” “our,” or “us”) operates the BXConnect platform and is committed to protecting your privacy. This Privacy Policy describes how we collect, use, disclose, and safeguard your information when you use our website and services related to the Canadian Bronchiectasis and NTM Research Registry.

2. Information We Collect

We may collect the following types of information:

• Personal information you provide (e.g., name, email, affiliation) when contacting us or registering for updates.
• Research and registry data as described in study consent and ethics documentation for participants.
• Usage data such as IP address, browser type, and pages visited to improve our site and services.

3. How We Use Your Information

We use collected information to operate and improve BXConnect, respond to inquiries, comply with legal and ethical obligations, and support research activities in accordance with applicable ethics approvals and consent.

4. Sharing and Disclosure

We do not sell your personal information. We may share information with research partners, institutions, or authorities only as permitted by consent, ethics approval, or law. Registry data is handled according to study protocols and institutional policies.

5. Cookies and Tracking

Our website may use cookies and similar technologies for functionality, analytics, and preferences. You can manage cookie settings in your browser. Essential cookies are required for the site to function.

6. Security

We implement appropriate technical and organizational measures to protect your information against unauthorized access, loss, or misuse. Research data is subject to additional safeguards under our ethics and data governance policies.

7. Your Rights

Depending on your jurisdiction, you may have rights to access, correct, or delete your personal information, or to withdraw consent where applicable. For registry participants, rights are also described in the study information and consent materials.

To exercise your rights or ask questions about this policy, contact us using the details below.

8. Changes and Contact

We may update this Privacy Policy from time to time. The “Last updated” date at the top will reflect the most recent version. We encourage you to review this page periodically.

For privacy-related questions or requests, contact us at [email protected] or through the contact page.